Talking to my primary care doctor about my concerns with my decline in my cognition

The other day, I had a physical with my primary care doctor. He knows that I was diagnosed with Early Onset Alzheimer's Disease (EOAD), then Mild Cognitive Impairment (MCI). He wanted a list of my current medications which I gave him.

I explained that I felt that I was doing pretty well with my cognition, but over the past few years, I have noticed some decline. I told him that my comprehension is greatly decreased because I sometimes struggle with understanding what someone is saying to me. I also explained that very recently my boyfriend and I have noticed a new behavior, which is that I’m fidgeting. I told him that this usually happens in the evening and it doesn’t happen every day.

He said both my lack of comprehension and fidgeting could definitely be related to dementia. Even though, I thought this could be the reason, especially for the fidgeting, these were still tough words for me to hear. Knowing that I’m declining, especially when things have been pretty stable for many years, is very difficult for me to grasp.

In time, I know that I will make the necessary changes in order to help me cope with these changes. In the near future, I will be seeing a new neurologist and I will see how things are going.

Sometimes I feel as if this is happening to someone else and I'm just watching it happen. That is such a weird feeling.